What we're talking about

hardeep singh on The Taxi Industry hi, iwant to get atexi plate on rent or lease in brisbane can you let me know about this. thanks more
tee on Halal certification I found a leggos sauce, straight in the bin it goes. Master foods don't seem to have the symbol and nestle. I know it's not ... more
lol on A few facts on illegal boat people lol minecarft more
Luana on Learning from one another? Lucy and Linus (who where brother and sietsr) had another little brother named Rerun. (He sometimes played left-field on ... more
Gabby on Learning from one another? Would be good to get some background from Fjordman on this. As we may be mnissig some cultural or political nuance or ... more
Sukhjinder singh on The Taxi Industry Hi I'm sukh.... I have 2yrs experience as a cab driver. I want cab on set pay or lease. I'm sure u help me n I'm sure u ... more
Kim on Crime Mapping Gavin's suggestions about how to treat the incarcerated would probably breach human rights. Addicts should be treated, and ... more
susan on Halal certification bye dick smiths products he is not certified go onto halalchoices.com.au and see the list of companys that are there you ... more
susan on Halal certification we must boycott halal certified products 2% of everything we bye with the mark goes to terrorists and there religon these ... more
Jennifer on Halal certification Goodgrief Timtam ... I can't believe you think that Islamic guidelines are healthier in terms of hygiene than our Australian ... more
Jennifer on Halal certification This is Australia not Islam. We built this country with hard labour and not for immigrants to come in and take over. ... more
phil.k. on Halal certification lets get politicans to ban this practice as they have in NZ.It is slowly deviding aussie in to religious groups,next ... more
geegee on Learning from one another? I don't want my grand kids brainwashed.I am also totally sick of political correctness.If you don't like it leave it. more
Durkim on New Zealand Gangs Mm, yeah... Real funny, Randhil... more
Kayli on The Boats God help me, I put aside a whole afteroonn to figure this out. more
Raynes on Tax and Pollution Until I found this I thoguht I'd have to spend the day inside. more
James Brown on Mark Latham Mark, you must fell as if you are pushing it uphill, but you are the hope of the side. Keep it up! more
Michael on Halal certification The Halal Choices website is http://www.halalchoices.com.au/product_lists.htmlIt lists all the products that have been ... more
a barker on A few facts on illegal boat people We are the Lucky Country, or are we?.15 years ago maybe.How many Indonesian Officials are taking a a bribe from the people ... more
Robin on The Boats Hey,Thanks! Great post you have written on "The Boats ".Really I can say that your post is very informative, I'll come ... more

PNH: Life Saving Treatment

Posted by: Michael Smith | 30 June, 2010 - 3:54 PM

4BC Drive talks to Prof Jeffrey Szer, Director of the Department of Clinical Haematology & Bone Marrow Transplant Service at the Royal Melbourne Hospital. They talk about a drug that could save Linda Charlton, who suffers from PNH who which Michael Smith reported on earlier this week.

Blog comments

Hi David,

The best way to support us is to write to your local Federal MP and request they write to the Health Minister The Hon Nicola Roxon MP, the Prime Minister, the Deputy Prime Minister/Treasurer and the Finance Minister, urgeing them to fund this treatment immediately. We are waiting for the outcome of a PBAC review on 7-9 July which I am confident will again result in a recommendation that the Government fund Soliris. Please also sign and circulate the petition. You can contact me for further information through our website.
Kind regards,
Linda Charlton
President
PNH Support Association of Australia Inc

Linda Charlton Friday 2 July, 2010 - 1:20 PM
As the words imply - PUBLIC HEALTH - is health treatment for every citizen of Australia. A 1 in a million medication should never be compared to something as common as the Flu Jab, for example.
Every patient has to be treated as absolute equals and be damned with the costs.

Phil of Mitchelton Friday 2 July, 2010 - 12:18 AM
Michael,

If we all don't get behind you on this - the grubby government will let this girl be sacrificed.

Who can we contact in Canberra or Brisbane?

Keep up the great work - don't let the bastards win.

David Thursday 1 July, 2010 - 3:13 PM