What we're talking about

hardeep singh on The Taxi Industry hi, iwant to get atexi plate on rent or lease in brisbane can you let me know about this. thanks more
tee on Halal certification I found a leggos sauce, straight in the bin it goes. Master foods don't seem to have the symbol and nestle. I know it's not ... more
lol on A few facts on illegal boat people lol minecarft more
Luana on Learning from one another? Lucy and Linus (who where brother and sietsr) had another little brother named Rerun. (He sometimes played left-field on ... more
Gabby on Learning from one another? Would be good to get some background from Fjordman on this. As we may be mnissig some cultural or political nuance or ... more
Sukhjinder singh on The Taxi Industry Hi I'm sukh.... I have 2yrs experience as a cab driver. I want cab on set pay or lease. I'm sure u help me n I'm sure u ... more
Kim on Crime Mapping Gavin's suggestions about how to treat the incarcerated would probably breach human rights. Addicts should be treated, and ... more
susan on Halal certification bye dick smiths products he is not certified go onto halalchoices.com.au and see the list of companys that are there you ... more
susan on Halal certification we must boycott halal certified products 2% of everything we bye with the mark goes to terrorists and there religon these ... more
Jennifer on Halal certification Goodgrief Timtam ... I can't believe you think that Islamic guidelines are healthier in terms of hygiene than our Australian ... more
Jennifer on Halal certification This is Australia not Islam. We built this country with hard labour and not for immigrants to come in and take over. ... more
phil.k. on Halal certification lets get politicans to ban this practice as they have in NZ.It is slowly deviding aussie in to religious groups,next ... more
geegee on Learning from one another? I don't want my grand kids brainwashed.I am also totally sick of political correctness.If you don't like it leave it. more
Durkim on New Zealand Gangs Mm, yeah... Real funny, Randhil... more
Kayli on The Boats God help me, I put aside a whole afteroonn to figure this out. more
Raynes on Tax and Pollution Until I found this I thoguht I'd have to spend the day inside. more
James Brown on Mark Latham Mark, you must fell as if you are pushing it uphill, but you are the hope of the side. Keep it up! more
Michael on Halal certification The Halal Choices website is http://www.halalchoices.com.au/product_lists.htmlIt lists all the products that have been ... more
a barker on A few facts on illegal boat people We are the Lucky Country, or are we?.15 years ago maybe.How many Indonesian Officials are taking a a bribe from the people ... more
Robin on The Boats Hey,Thanks! Great post you have written on "The Boats ".Really I can say that your post is very informative, I'll come ... more

Jacqui Scott

Posted by: Michael Smith | 29 June, 2010 - 4:40 PM

4BC Drive talks to Jacqui Scott, a brave mother who currently has two sick daughters with separate illnesses. One daughter is being treated according to her illness, but the government is denying the drugs that might help the other daughter survive. There is a petition to sign - have your say.

Blog comments

I just heard about the $ 1.1 billion that the Labour Government has left from the first home buyers scheme! Surely some of this money could be used to fund Soliris for the critically ill patients with PNH?

Danielle Stokes Thursday 22 July, 2010 - 6:10 PM
Minister Nicola Roxon you and your Corrupt Labor Govt have spent Millions on telling the Australian Public how good you are, however you refuse to help Mrs Jacqui Scott, save the lives of her two daughters by supplying the drug that will keep then alive.
If one of the Trough Swilling Politicians were to be affected, money would be flowing unrestricted.

Maarten V Thursday 22 July, 2010 - 3:40 PM
Mark, Jacqui,Jenny and all the other suffers of this disease my heart goes out to you.
I have already emailed Nicola Roxon directly may I suggest all the other bloggers do the same as well as signing the petition.

Gayle Thursday 1 July, 2010 - 5:02 PM
Smithy/i listened to our old premier Beaty this morning talk about pattel saying at the time we had not enough doctors due to a higher population this bloke is unbelievable the amount of bulshit continues to dribble out of his mouth trying to cover up a situation which should have never happened.With the large amount of buracrates that us taxpayer continue to pay wages for what a joke they continue to stuff it up and this imbisile is back in the country sprooking more BS,I dont know maybe we should revot against these bastards get answers why they keep they jobs? If they worked in the public sector like you and me they would not have a job.

Steve Thursday 1 July, 2010 - 9:37 AM
There is a saying that you need to master the ordinary to achieve the extraordinary.

How the hell can we even expect this bunch of less than ordinary pollies to achieve anything?

It seems an ordinary human reaction to simply supply the necessities of life to those in need.

But this lot have no compuction in wasting our money on the unnecessary.

By refusing to help this family shouldn't they be held responsible for (God forbid) the demise of this young woman. Aren't they then as guilty as Patel??

Jim Hooper Thursday 1 July, 2010 - 8:24 AM
I'm another sufferer of this condition, and apart from it not being funded, the thing that angers me most about this bloody government is the underhanded and deceitful way they went about refusing to fund it. Clearly Mr Swan has told Roxon that funding this isn't as electorally pleasing as spending money in other areas. "Find an out for us" he said. Roxon has then, just before budget release, announced a change of criteria for funding drugs under the Life Saving Drugs Program. " Cant fund it" she said, "it needs to be re-assessed against the new criteria". ( It met the old criteria ) This drug is magnificent. To say "we'll fund it next year if it meets the new criteria" is just toying with peoples lives. People will die waiting for this drug and all the government cares about is getting re-elected. They are vile.

mark Wednesday 30 June, 2010 - 6:03 PM